Kidney Cancer Adventure
Last Update Jul 16, 2018
Kidney Cancer Study Group Meetings
Hall County or North Atlanta
If you or someone you know has been diagnosed with Kidney Cancer, I'd like to recommend that you, and they, read ImmunoPatient by Peter Rooney. It provides a great framework for understanding the terminology, sequence of "expected" events, and provides a great sense of hope. He participated in a post surgical treatment, and then a Phase III trial for Sunitinib, that completed in 2016.
Just a quick update (May 2018): The standard routine with no identifiable metasis after having a kidney removed, is a CT Scan every 3-4 months for 2 years, or until some lesions are discovered in the other kidney, lungs, brain, or other area of the body. My first Scan was February 14, 2018, and I'm happy to report no evidence requiring investigation. I had my Prostate removed in 1998 with cancer, also with negative margins (meaing no signs of metasis, or spread outside of the affected organ). That hasn't showed up again either!! In the interim, I did a round of research and decided I would adopt a vegetarian diet approach (started in early February). The primary driver was the YouTube Video "What the Health?", along with other Youtube videos related to Kidney Cancer treatments, trials and research, as well as Veganization (?). At any rate, after 3 months, I felt like I was not completely stable, and tired easily. I have still not reached my pre-kidney removal levels in my daily exercise routine at the gym. After doing some additional research on Protein, it was obvious I was not getting enough of that. Essential for muscle maintenance (oh Yeah, the heart is a muscle), I have (as of last Saturday) added chicken and fish back into my diet. I already feel somewhat better, and will renew my daily exercise routine tomorrow (I have been on a break due to a vacation trip and colonoscopy). Next scheduled Scan will be June 13th. I'm convinced there are strong associations and impacts between diet and health, and a huge obstacle, at least in this country, to clear research about preventing major diseases. We (the US) are focused on treating medical conditions, not advoiding them. This is a medical industry\profitization\economic issue. Looking at Germany & Australia's efforts, specifically studies related to marijuana directives and children with Epilepsy, I have added additonal research goals to my own efforts related to finding the organizations and groups that can bring some light to a broader cancer phsysiological avoidance perspective. These are the kinds of issues I wish to address with, and through, a physical Support Study Group. I'll let you know what I find in the mean time. Stay tuned, and let me know your involvement in the subjects, particularly if you live in North Georgia.
(July 2018) The June CT Scan was clear, next scheduled is Dec 2018. Added chicken and fish back into the diet for protein, and the exercise is back to pre-surgery levels. I'll be adding weights back in starting next week. I was contacted through the Inspire Team (Inspire.com) about additional trials. I believe that if\when the next step is required due to the discovery of lesions, the prescribed treatment is pretty well pre-defined. Unless you want to immediately participate in a trial (huge financial benefits as the drugs are free), you will get the "standard" treatment, depending on where the mestasis is discovered. This is the reason I decided upon the most convenient Oncologist. All the advertising about Teams of Doctors and focus are critical after you've already had the first 1-3 step treaments, and still need more. Until that time, you have to progress through 1-3. Not surprising then, I haven't spent much time investigating, as steps 1-3 will consume 1-5 years, so the current trials that will be relevant to me haven't started yet. However, I am still very interested in finding or creating a physical study group.
Kidney Cancer Drugs and their Status
Phase III Trials - with Results
Corrections, questions, suggestions, problems or recommendations are always welcome. Please email Dan@GallaghersInGA.com or