Cancer Adventure .

Kidney Cancer Adventure     Last Update February 5, 2018

        The picture is from my last year of work. I retired in May 2015. It's a good thing, as I needed time off to have triple bypass, open heart surgery in August. I recovered, and built a real appreciation for not working. With so much time available, I'm now working a bout of ccRcc, kidney cancer. Discovered in September 2017 through imaging, the left kidney was removed November 30th. Turned out to be Stage III, with no indication of metastisis.

        I thought I would add this page as I would like to start a Kidney Cancer Support Group. There are none, as far as I can tell, anywhere in Georgia. I've talked to two Oncologist (one more to go) in order to select one to move forward with. Neither of their Nurse Navigators thought there were any cancer specific groups that meet physically, only on-line. If you know patients or care-givers dealing with Kidney Cancer, please ask them to call me about this group. I'll be adding Information to this page that I find about trials, and those that are germain, I'll track and update. I'll also list the useful websites that I have used to get eduated on the topic. There are also several large organizations involved in various kinds of efforts, that have annual, multi-day educational sessions. I'm going to try and combine my trips to include these sessions, and hit street rod shows in route. Might also combine the Kidney Cancer Support Group with Genealogy, as there is some relationship to some Kidney Cancers and heredity, and I've just sent my DNA for testing.

Kidney Cancer Support Group Forming

Hall County or North Atlanta

       If you or someone you know has been diagnosed with Kidney Cancer, especially recently, I'd like to recommend that you and they read ImmunoPatient by Peter Rooney. It provides a great framework for understanding the terminology, sequence of "expected" events, and provides a great sense of hope. He participated in a post surgical treatment, and then a Phase III trial for Sunitinib, that completed in 2016.

Helpful Websites

Education Conferences

Phase III Trials - with Results

Questions, suggestions, problems or recommendations welcome. Please email or call 678-848-1830.